Exploration through enhanced research
Members of the Center for Palliative Care began our research program in 2010. Our research aligns with our mission to relieve the suffering and to improve the quality of life for patients with advanced disease, as well as their families. We hope to accomplish this through compassionate and high quality care while advancing the field of palliative care through innovation, education and research.
Current Studies
Cognitive-behavioral intervention for insomnia and worry
Patients with advanced cancer frequently experience multiple overlapping psychological and physical symptoms (pain, fatigue, insomnia, anxiety, depression). The most common approach to managing these symptoms is to focus on individual symptoms – at times to the exclusion of other more pressing symptoms. Two of the most common and stressful symptoms of patients with advanced disease are insomnia and worry. Individuals with cancer frequently spend many sleepless nights with uncontrolled symptoms and anxiety about these symptoms or the impact of the disease on their family. This study examines the impact of a cognitive-behavioral “symptom cluster” intervention on patient biobehavioral outcomes (uncertainty, sleep, immunity).
Palliative care needs assessment
Despite the benefits of palliative care in reducing symptoms and improving overall quality of life for patients with advance disease, in most cancer centers referral to such services tends to be low. Palliative care is often confused with hospice care – so referrals often come late in the disease process, when patients and families are experiencing symptom crises. This project examines the rates and predictors of referrals for palliative care services across multiple types of cancer. This study also examines predictors of distress among patients with different sites and phases of disease in order develop clinical-research collaborations to tailor palliative care services to patients who might need it most.
Hritz CM, Barrett TA, Gustin JL. Palliative Care in Heart in eds (Baliga RR, Abraham WTA). Color Atlas and Synopsis of Heart Failure, McGraw Hill 2017 (in press)
Pedraza, S, Barrett T, Hritz C. Frailty in Heart Failure. Encyclopedia of Cardiovascular Research and Medicine, Elsevier 2017
Gustin J, Nausea and Vomiting. ISBN: 978-1-945872-07-5. In Ferris FD, Gustin J (eds). Palliative Care Interdisciplinary Curriculum. Copyright © 2016 Frank D Ferris. PCIC ISBN: 978-0-9884318-1-2.
Pedraza S, Yennurajalingam S, Balachandran D. Sleep Disorders. Frailty in Heart Failure in Textbook of Palliative Medicine, Second Edition Bruera E, Higginson I, Von Gunten C, Morita T editors. 2016.
Gustin J, Introduction to Patient Assessment. ISBN: 978-1-945872-10-5. In Ferris FD, Gustin J (eds). Palliative Care Interdisciplinary Curriculum. Copyright © 2016 Frank D Ferris. PCIC ISBN: 978-0-9884318-1-2.
Gustin J, Prognostication. ISBN: 978-1-945872-11-2. In Ferris FD, Gustin J (eds). Palliative Care Interdisciplinary Curriculum. Copyright © 2016 Frank D Ferris. PCIC ISBN: 978-0-9884318-1-2.
Wells-Di Gregorio, S.M. (2008). Family End of Life Decision-Making. In J. Werth & D. Blevins (Eds). Decision-Making Near the End of Life: Recent Developments and Future Directions. Routledge Publishing